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    2017 conference

    May 31, 2017

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    TSF Team

    The weekend will kick-off Friday at 7pm with our Meet & Greet located in the Marriott conference room. This is always a fun time to socialize, meet new friends and exchange stories. The Tracheal Stenosis Foundation will be providing hors d'oeuvres, raffle prizes and th...

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    TSF meets to discuss Conference

    April 30, 2017

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    TSF Team member Nikki

    Hey everyone,

        This is your weekly update with news and information about the upcoming TSF conference.  Kesi and I met up with a couple of other TSF members on Saturday to discuss the Conference in June. The hotel is in a great location, located in the Perimeter area...

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    To the Nurse Who Said the Most Perfect Words About My Rare Disease

    April 13, 2017

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    The Mighty

    For Full Article Please Visit

    https://themighty.com/2017/03/how-a-nurse-helped-me-with-rare-disease/

    Dear Nurse,

    I’m sure for you it was just an ordinary day. It is just what you do. You are so filled with compassion that it just comes out of you naturally.

    But you made a...

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    Host Hotel For 2017 TSF Conference

    April 11, 2017

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    TSF Team

    We are excited to host the 4th Annual Tracheal Stenosis Foundation Conference this year in Atlanta, GA. This is a weekend event open to all TS patients, families, friends, the medical community and public from June 2 - June 4, 2017. We will be hosting this year's Meet...

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    Conference Announcement

    March 11, 2017

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    TSF Team

    I am pleased to announce that we will be hosting the 4th Annual Tracheal Stenosis Foundation Conference in Atlanta, GA this year. We have changed the agenda a bit to make it more interactive, while still learning about new treatments and procedures to treat tracheal an...

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    Arkansas Rare Disease Day

    March 9, 2017

    By TSF member, Sara Parker Bailey:

    I learned something new at the Arkansas Rare Disease Day that I had never heard before. Maybe some of you have, but I thought I would share it with you as I find it kind of a fun fact. Doctors are taught “when you hear hoof beats, don’...

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    Videos from third annual TSF conference - Chicago

    March 9, 2017

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    Video From First Annual TSF conference

    March 9, 2017

     Dr. Weinberger From Augusta University Medical Center

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    Tracheal Stenosis was well represented this year at the NORD events around the country.

    February 17, 2017

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    Nikki

    This was the first year Tracheal Stenosis was represented at the National Organization of Rare Disease Events around the country.  My wife and I attended the event held at Georgia's Capital in February.  It was a huge success. There are so many other rare diseases that...

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    Dr. Lorenz explains the Reacher Procedure

    August 1, 2016

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    2017 conference

    May 31, 2017

    TSF meets to discuss Conference

    April 30, 2017

    To the Nurse Who Said the Most Perfect Words About My Rare Disease

    April 13, 2017

    Host Hotel For 2017 TSF Conference

    April 11, 2017

    Conference Announcement

    March 11, 2017

    Arkansas Rare Disease Day

    March 9, 2017

    Videos from third annual TSF conference - Chicago

    March 9, 2017

    Video From First Annual TSF conference

    March 9, 2017

    Tracheal Stenosis was well represented this year at the NORD events around the country.

    February 17, 2017

    Dr. Lorenz explains the Reacher Procedure

    August 1, 2016

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