The weekend will kick-off Friday at 7pm with our Meet & Greet located in the Marriott conference room. This is always a fun time to socialize, meet new friends and exchange stories. The Tracheal Stenosis Foundation will be providing hors d'oeuvres, raffle prizes and th...

Hey everyone,

    This is your weekly update with news and information about the upcoming TSF conference.  Kesi and I met up with a couple of other TSF members on Saturday to discuss the Conference in June. The hotel is in a great location, located in the Perimeter area...

For Full Article Please Visit

https://themighty.com/2017/03/how-a-nurse-helped-me-with-rare-disease/

Dear Nurse,

I’m sure for you it was just an ordinary day. It is just what you do. You are so filled with compassion that it just comes out of you naturally.

But you made a...

We are excited to host the 4th Annual Tracheal Stenosis Foundation Conference this year in Atlanta, GA. This is a weekend event open to all TS patients, families, friends, the medical community and public from June 2 - June 4, 2017. We will be hosting this year's Meet...

I am pleased to announce that we will be hosting the 4th Annual Tracheal Stenosis Foundation Conference in Atlanta, GA this year. We have changed the agenda a bit to make it more interactive, while still learning about new treatments and procedures to treat tracheal an...

By TSF member, Sara Parker Bailey:

I learned something new at the Arkansas Rare Disease Day that I had never heard before. Maybe some of you have, but I thought I would share it with you as I find it kind of a fun fact. Doctors are taught “when you hear hoof beats, don’...

 Dr. Weinberger From Augusta University Medical Center

This was the first year Tracheal Stenosis was represented at the National Organization of Rare Disease Events around the country.  My wife and I attended the event held at Georgia's Capital in February.  It was a huge success. There are so many other rare diseases that...