This was the first year Tracheal Stenosis was represented at the National Organization of Rare Disease Events around the country. My wife and I attended the event held at Georgia's Capital in February. It was a huge success. There are so many other rare diseases that I never knew even existed. At the last minute, we were asked to present and speak about TS and the foundation. My voice was acting up that day, so I had Kenyetta speak. Here is a short video of our expierence.
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I'm busy working on my blog posts. Watch this space!