Thank you for a wonderful

4th Annual Tracheal Stenosis Conference

     We would like to thank everyone for traveling from all over the world to attend the 4th Annual Tracheal Stenosis Conference. We had a great weekend of events, starting with the Meet and Greet on Friday, then the conference and ending with a wonderful brunch before checkout on Sunday. It was a pleasure meeting everyone and hearing all your stories. I am also grateful to all the doctors that unselfishly gave their time to share information and meet patients and families. One doctor laughed when her patient mentioned that she looks so different outside of scrubs:)

     Each doctor shared their research, experience and even personal and emotional stories, which enabled us to get to know these doctors in a more informal manner than we normally would in a doctor's office or in surgery. We are thankful for their knowledge, experience with this rare disease and desire to change our lives.

We would also like to announce that we will begin to host the Tracheal Stenosis Conference every other year going forward.  Therefore the next event will take place in Spring 2019. While, the conferences are a wealth of information and an opportunity for us to meet the doctors and network with other patients, statistics and findings may not change each year or as much as some may assume. Additionally, the foundation would like to also focus efforts on outreach and raising awareness through activities and fundraisers. We will have large fundraisers on each non-conference year in different cities. As patients, we have to make our voices heard. In doing so, we will advocate for better testing for TS (not assume its' asthma), educate the public and the medical community on this rare disease and continue to support research for improved treatment.

Lastly, I want to thank everyone that made a financial donation this year. Your donations make these events and future events possible. As always, we are grateful for your generosity. Anyone still interested in donating may do so by visiting


     For those who could not attend, there is a professional recording that will be released from Emory after it goes through editing. We will be sure to post the video as soon as it is ready. I hope to see everyone next year for a fundraiser and in 2019 for the next conference.


2017 TSF Conference - COMING SOON

Moments Captured at 2017 Events

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Dr. Marshall Smith
Dr. Marshall Smith

Dr. Marshall Smith is a professor of Otolaryngology-Head and Neck Surgery. He is a board certified otolaryngologist and the medical director of the Voice Disorders Center. He completed his residency in Otolaryngology at UCLA and a fellowship in Pediatric Otolaryngology in Cincinnati. He is an NIH funded investigator and participates in research on various voice disorders. He provides evaluation, medical and surgical care of the voice.

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Dr. Robert Lorenz
Dr. Robert Lorenz

Dr. Robert Lorenz is an ENT-otolaryngologist in Cleveland, Ohio and is affiliated with Cleveland Clinic. He received his medical degree from University of Rochester School of Medicine and Dentistry and has been in practice between 11-20 years. He is one of 40 doctors at Cleveland Clinic who specialize in Otolaryngology.

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Dr. Paul F. Castellanos
Dr. Paul F. Castellanos

Associate Professor of Otolaryngology Director, UAB Voice and AeroDigestive Center. Areas of Interest: Voice and swallowing disorders, Stenosis of the swallowing or breathing channel, Management of benign and malignant laryngeal pathology, Esophageal and pharyngeal manifestations of reflux disease, Care of the professional voice, Trans oral laser microsurgery (TLM), Minimally invasive laryngopharyngeal reconstruction, Trans oral robotic surgery (TORS)

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Dr. Villari
Dr. Villari

Dr. Villari from Emory has clinical and research interests encompass all voice, swallowing, and airway disorders but has a particular interest in airway stenosis and endoscopic treatment of early laryngeal cancers and premalignant lesions.  My Clinical Interests dysphagia endoscopy Larynology larynx/voice box cancer voice disorders

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Dr. Hatcher
Dr. Hatcher

Dr. Hatcher from Emory specializes in laryngology, taking care of patients with voice, airway, and swallowing disorders. My Clinical Interests bronchoscopy dysphagia dystonia endoscopy esophageal stenosis/strictures esophagus Larynology laser surgery microsurgery tracheal surgery voice disorders

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Dr. Gelbard
Dr. Gelbard

Dr. Alexander Gelbard is an ENT-otolaryngologist in Nashville, Tennessee. He received his medical degree from Tulane University School of Medicine and has been in practice between 6-10 years. Specialties & Qualifications Specialty: Otolaryngology Otolaryngologists (also known Ear, Nose & Throat doctors) specialize in disorders of the head and neck ranging from hearing loss to cancer. Subspecialties: General Otolaryngology/ENT, Laryngology & Voice Disorders

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