Hey everyone, This is your weekly update with news and information about the upcoming TSF conference. Kesi and I met up with a couple of other TSF members on Saturday to discuss the Conference in June. The hotel is in a great location, located in the Perimeter area of Atlanta. There is plenty of shopping and entertainment nearby. The hotel offers a courtesy shuttle service for area attractions and stores. Also the hotel will offer the attendees free parking vouchers for t

For Full Article Please Visit https://themighty.com/2017/03/how-a-nurse-helped-me-with-rare-disease/ Dear Nurse, I’m sure for you it was just an ordinary day. It is just what you do. You are so filled with compassion that it just comes out of you naturally. But you made a world of difference to me, far more than you will ever know. As I sat in the waiting room all dressed in the appropriate patient attire — gown, housecoat, hospital slippers I once again ran through in my hea

We are excited to host the 4th Annual Tracheal Stenosis Foundation Conference this year in Atlanta, GA. This is a weekend event open to all TS patients, families, friends, the medical community and public from June 2 - June 4, 2017. We will be hosting this year's Meet and Greet at the Atlanta Marriott Perimeter Center. We also secured a $99/night group rate for all guests traveling to Atlanta for this event. Please find the hotel information below. We look forward to seeing e